I don't have chronic illness, but I know people that have. Finding a doctor to help actually find the cause is so hard. It hurts when you know you can't do a thing, but just support the person going through it along the way.
It so frustrating how some doctors even are allowed to be so, sometimes even when they are board certified. I remember back when my family had to switch eye doctors because our insurance wasn't covering our good doctor. We tried so many, and one literally said to me "Your is big trouble, your eyes are so terrible!". Said the same to the rest of my family, but why me? Just because I have to wear glasses? My entire family, myself included, actually have really bad ALLERGIES. I have blurred vision (forgot what it's called) and need to wear glasses, and my allergies make it worse. Thank god my mum is paying cash to see our old doctor, and I'm grateful everyday for that.
literal tears in my eyes. i have a couple of chronic illnesses and just… this brought me back to places i didn’t want to be. but i still appreciate this game, and i’m so sorry you had to go through all that too. <3
Thank you for this game. It can be really hard to explain to people why it takes so long to get a diagnosis and this illustrates perfectly all the hoops chronically ill people have to deal with. Thank you from the bottom of my heart.
I can feel this, experiencing some form of nerve pain/discomfort. It took me some recommendations from people that I trust that I was eventually able to get at least decent medical treatments (and generally that means higher cost as well, not to mention that neuropathy is just something that medical research hasn't figured out much yet).
Glad this game was made. Maybe someday we will have an alternative storyline that can be "enjoyed" by non-painlings as well.
This game was great, I'm going through something similar and it's really frustating so reading stories of people going through the same thing is comforting
bro as someone who just got diagnosed with a chronic illness, (after actually forever) this game really hit home for me, super nice knowing I'm not alone, 10/10, amazing writing and game design as always, and good luck to everyone out there struggling, I hope if nothing else things get more manageable for you
Thank you for making games like this. I hope you're well. I don't have genetic chronic illness, but I've been suffering with allergic rhinitis and ezcema for over 10 years. It drives me crazy at times, so I could totally relate to this... It's really frustrating when doctors keep saying the same words without emotions!
Health is the most important thing. I hope you're well <3
i've suffered with lower back pain since i was 16, i am now 20. it took me months for me to get my first physiotherapy appointment, to essentially be asked "have you tried stretches before?" (....what do you think??? yes- i have!)
typically because back pain is so common i was brushed off, but the pain got to the point i couldnt sleep, struggled to do uni work, relax and i would struggle to walk normally. i also felt that at this age back pain is not common- it typically happens when youre older, so i felt very distressed that i was experiencing this at a young age. i also worried about what the underlying cause was, what if the cause of this pain was something serious?
this was made more difficult by the fact i am someone who is scared of the doctor and has a lot of anxiety surrounding seeing a doctor. i would have to push myself A LOT to just get in contact, i would try to be really brave, just to be brushed off when i finally built the courage to ask for help after suffering for ages.
thank you for making this. i'm currently going through this, hitting about year 9 of constant misdiagnoses and medication that didn't work. i still haven't been diagnosed with an invisible chronic illness (that i have a suspicion that i have) and regularly get dismissed by the doctors i go to </3. i hope one day a doctor can see that i'm not lying and doesn't downplay my symptoms.
I have lived my whole life with a chronic illness, whicg has lead to a cascade of other wacky chronic ailments as I've grown. Very much in the same boat with "taking medicine to delay (MASSIVE) surgery.
I can empathize, if you ever want to trade stories or talk it out a bit, happy to throw that offer out. As well as resources if you need help or info!
much love to all!
p.s. To all: Go play But You Seem Fine. Its great in how it eximplifies invisible ailments/disabilities, and the challenges they can pose.
I was finally diagnosed with my chronic illness last year. Took too many doctors and too much medicine that just made me even more sick. Playing this made me cry, but it's wonderful knowing I'm not alone in my experience. Thank you so much for this
Great game, whether you think it's fun or not, it's great, and I am glad to see someone making a game to bring attention to such a serious matter, thank you.
I dont have a chronic illness, but I am autistic and that feeling of being off, of not quite knowing whats wrong, just that something is. Is very relatable.
going thru this rn my physio is trying to help but the specialists where i live r awful they have a history of misdiagnosing patients and not listening i drove 4 hrs just to be told to take ibuprofen and use heat packs i found out later they were meant to do tests, not just a consult. i have extreme unexplained joint pain/weakness. this sim was amazing and im so glad people r actually talking abt medical professionals ignoring signs always trust ur gut!!!
as someone with a chronic illness this almost made me cry. especially when they said mc wasnt 'imagining it'' :") great 'game' as always and I'm sending lots of love your way<333
First, I want to say that I read your post and I want you to know that I completely understand and will continue to support you. Second, I want to say thank you for making this game. It really makes you think about your health, especially when doctor's don't believe you or aren't really listening. All people want is to be understood and acknowledged. Again, thank you for making this game. I know I am only one person but if you ever need anything at all, I will be here. :)
hopeful that the ending of this game will become my reality soon. if i get told one more time that im "not exercising enough"something bad will happen! very relatable.
As someone who has had my fair share of jumping around doctors for my mental health diagnosis, I feel this. Everyone says you have to listen to the doctor but so often the doctor doesn’t listen to you. The good a doctor can do by listening and caring is huge and so is the harm a doctor can do by not. It’s sad how much of the medical world this kind of carelessness and refusal to listen to patients affects. From mental to physical to sexual care, I’ve seen so many people see tossed aside by the healthcare system :(
Wow, this is a really painful, but beautiful experience to see. I sympathize and empathize in number of moments that happened in this game, mostly in the meeting of the doctors. You've conveyed everything a lot of this in it. I such had a still kind of emotional experience, and it's a good one. The conflict until someone finally understands, and actually listens is a journey I enjoyed. I'm sorry if I'm still not really good in words, but I still hope I still conveyed my message properly.
For presentation, I really like the art, and the music going on in this as well. And as well, the animation for succeeding and failing, it's also cute.
Overall, this is really good. I also did a playthrough/readthrough of the VN, but I hope it's alright.
Thank you for making this - it perfectly shows the journey many of us, unfortunately, go through (especially if you're afab). I had to go through four years of gaslighting and horrible medical professionals before someone actually bothered to check - and when they did, they found out I had been diagnosed 1-2 years prior and no one had told me; they all had just kept pushing me until my body fully broke down, hoping I'd "get better" (these were the same medical professionals who didn't even believe in chronic illnesses/disabilities). I absolutely love all of your games and this one really hit hard for me - I even cried at the ending. Thank you again. I can't wait for what else you release!
P.s. I've always wanted to read a book or short story written by you :)
I'm glad there's a game for this, doctors really do not bother to diagnose and it's really sad how many trials a person will face until diagnosis. I got the bad ending where the mc sadly was so chronically ill that they lost the ability to do any activity... it was really heartbreaking.
this is relatable. i - i'm still in the "getting diagnosis" stage and i have fully given up. my mate keeps pushing me to try but like... lmao, doctors don't care and don't listen.
I know this isn't the same thing as a chronic illness but before I got diagnosed with PCOS, my doctor told me that the reason my cycle was off was because of ME and that I needed to change something. Doctors are trained to find the most convenient loophole to go through instead of treating the problem directly. This game shows that
Thank you for sharing this game with us. The frustration you experienced and conveyed in the gameplay loop is palpable, as is the relief of finally being heard by a doctor, even though it really shouldn't have taken so long. I hope you're in a much better place now than you were before, and I wish you the very best.
Thank you for making this game! For me it hit way too close to home, after 10 years of going back and forth between doctors and rarely being taken seriously. And even after my diagnosis there are still symptoms that are unclear where they come from or doctors who don't take the diagnosis seriously. I like how you integrated the stats and that the influence of pain and energy/stress is visible. Being chronicially ill can be tiring and frustrating experience and the game captures that very well.
I wish you lots of perseverance and a good support network, tand again: thanks for making this game <3
Wow, this is very, very relatable. I also have a chronic illness and it took years before I got an official diagnosis. The "You're just imagining it"title is such a good idea!
I hope you can take it slowly and get better.
I happen to be a Japanese/English to French Translator, and I would love to make this game available to a French speaking audience. All my info are on my itch.io profile page, so by all means feel free to reach out if you're interested!
← Return to game
Comments
Log in with itch.io to leave a comment.
(SPOILERS!)
------------------------------------------------------------------------
When I saw that ending, it felt so, so good.
I don't have chronic illness, but I know people that have. Finding a doctor to help actually find the cause is so hard. It hurts when you know you can't do a thing, but just support the person going through it along the way.
It so frustrating how some doctors even are allowed to be so, sometimes even when they are board certified. I remember back when my family had to switch eye doctors because our insurance wasn't covering our good doctor. We tried so many, and one literally said to me "Your is big trouble, your eyes are so terrible!". Said the same to the rest of my family, but why me? Just because I have to wear glasses? My entire family, myself included, actually have really bad ALLERGIES. I have blurred vision (forgot what it's called) and need to wear glasses, and my allergies make it worse. Thank god my mum is paying cash to see our old doctor, and I'm grateful everyday for that.
------------------------------------------------------------------------
(SEMI-SPOIL SAFE)
Even if you don't read all this, no matter what your going through, may your life be filled with love, light and happiness without pain. :)
Never give up, your not imagining it. (Reference not exactly intended)
im not cryin you are
literal tears in my eyes. i have a couple of chronic illnesses and just… this brought me back to places i didn’t want to be. but i still appreciate this game, and i’m so sorry you had to go through all that too. <3
Thank you for this game. It can be really hard to explain to people why it takes so long to get a diagnosis and this illustrates perfectly all the hoops chronically ill people have to deal with.
Thank you from the bottom of my heart.
I can feel this, experiencing some form of nerve pain/discomfort. It took me some recommendations from people that I trust that I was eventually able to get at least decent medical treatments (and generally that means higher cost as well, not to mention that neuropathy is just something that medical research hasn't figured out much yet).
Glad this game was made. Maybe someday we will have an alternative storyline that can be "enjoyed" by non-painlings as well.
This game was great, I'm going through something similar and it's really frustating so reading stories of people going through the same thing is comforting
bro as someone who just got diagnosed with a chronic illness, (after actually forever) this game really hit home for me, super nice knowing I'm not alone, 10/10, amazing writing and game design as always, and good luck to everyone out there struggling, I hope if nothing else things get more manageable for you
this game is awesome. it gave me hope that maybe one day I will be able to get help
Thank you for making games like this. I hope you're well. I don't have genetic chronic illness, but I've been suffering with allergic rhinitis and ezcema for over 10 years. It drives me crazy at times, so I could totally relate to this... It's really frustrating when doctors keep saying the same words without emotions!
Health is the most important thing. I hope you're well <3
thank you for this game, it was very good.
i've suffered with lower back pain since i was 16, i am now 20. it took me months for me to get my first physiotherapy appointment, to essentially be asked "have you tried stretches before?" (....what do you think??? yes- i have!)
typically because back pain is so common i was brushed off, but the pain got to the point i couldnt sleep, struggled to do uni work, relax and i would struggle to walk normally. i also felt that at this age back pain is not common- it typically happens when youre older, so i felt very distressed that i was experiencing this at a young age. i also worried about what the underlying cause was, what if the cause of this pain was something serious?
this was made more difficult by the fact i am someone who is scared of the doctor and has a lot of anxiety surrounding seeing a doctor. i would have to push myself A LOT to just get in contact, i would try to be really brave, just to be brushed off when i finally built the courage to ask for help after suffering for ages.
thank you for making this. i'm currently going through this, hitting about year 9 of constant misdiagnoses and medication that didn't work. i still haven't been diagnosed with an invisible chronic illness (that i have a suspicion that i have) and regularly get dismissed by the doctors i go to </3. i hope one day a doctor can see that i'm not lying and doesn't downplay my symptoms.
Hello there, I hope youre well!
I have lived my whole life with a chronic illness, whicg has lead to a cascade of other wacky chronic ailments as I've grown. Very much in the same boat with "taking medicine to delay (MASSIVE) surgery.
I can empathize, if you ever want to trade stories or talk it out a bit, happy to throw that offer out. As well as resources if you need help or info!
much love to all!
p.s. To all: Go play But You Seem Fine. Its great in how it eximplifies invisible ailments/disabilities, and the challenges they can pose.
努力を続けてください、私は信じています...！ 申し訳ありませんが、私はまさにこれと同じ苦しみを味わったことがあります。他の人にも私と同じ苦しみを味わってほしくありません。 肩が長い間痛かったのですが、処方された薬は悪化させるばかりでした。その薬は私の胃を傷めました。そして 1 か月後には右足が麻痺しました。彼らは「胸椎の巨細胞腫」を発見しました。 体の声に耳を傾けてください。私たちは誰よりも自分の体のことをよく知っています！ 🥺
I was finally diagnosed with my chronic illness last year. Took too many doctors and too much medicine that just made me even more sick. Playing this made me cry, but it's wonderful knowing I'm not alone in my experience. Thank you so much for this
Married to someone with EDS and loved playing this game, thank you so much for being vulnerable and making and sharing.
Great game, whether you think it's fun or not, it's great, and I am glad to see someone making a game to bring attention to such a serious matter, thank you.
I dont have a chronic illness, but I am autistic and that feeling of being off, of not quite knowing whats wrong, just that something is. Is very relatable.
going thru this rn my physio is trying to help but the specialists where i live r awful they have a history of misdiagnosing patients and not listening i drove 4 hrs just to be told to take ibuprofen and use heat packs i found out later they were meant to do tests, not just a consult. i have extreme unexplained joint pain/weakness. this sim was amazing and im so glad people r actually talking abt medical professionals ignoring signs always trust ur gut!!!
as someone with a chronic illness this almost made me cry. especially when they said mc wasnt 'imagining it'' :") great 'game' as always and I'm sending lots of love your way<333
First, I want to say that I read your post and I want you to know that I completely understand and will continue to support you. Second, I want to say thank you for making this game. It really makes you think about your health, especially when doctor's don't believe you or aren't really listening. All people want is to be understood and acknowledged. Again, thank you for making this game. I know I am only one person but if you ever need anything at all, I will be here. :)
hopeful that the ending of this game will become my reality soon. if i get told one more time that im "not exercising enough"something bad will happen! very relatable.
the dilemma of choosing between going to the doctor or trying to relax for once is very real, great game
As someone who has had my fair share of jumping around doctors for my mental health diagnosis, I feel this. Everyone says you have to listen to the doctor but so often the doctor doesn’t listen to you. The good a doctor can do by listening and caring is huge and so is the harm a doctor can do by not. It’s sad how much of the medical world this kind of carelessness and refusal to listen to patients affects. From mental to physical to sexual care, I’ve seen so many people see tossed aside by the healthcare system :(
I almost teared up at the end :)
I loved this game i really related to this people telling me that i just complain and whine about everything
Wow, this is a really painful, but beautiful experience to see. I sympathize and empathize in number of moments that happened in this game, mostly in the meeting of the doctors. You've conveyed everything a lot of this in it. I such had a still kind of emotional experience, and it's a good one. The conflict until someone finally understands, and actually listens is a journey I enjoyed. I'm sorry if I'm still not really good in words, but I still hope I still conveyed my message properly.
For presentation, I really like the art, and the music going on in this as well. And as well, the animation for succeeding and failing, it's also cute.
Overall, this is really good. I also did a playthrough/readthrough of the VN, but I hope it's alright.
Thank you for making this - it perfectly shows the journey many of us, unfortunately, go through (especially if you're afab). I had to go through four years of gaslighting and horrible medical professionals before someone actually bothered to check - and when they did, they found out I had been diagnosed 1-2 years prior and no one had told me; they all had just kept pushing me until my body fully broke down, hoping I'd "get better" (these were the same medical professionals who didn't even believe in chronic illnesses/disabilities). I absolutely love all of your games and this one really hit hard for me - I even cried at the ending. Thank you again. I can't wait for what else you release!
P.s. I've always wanted to read a book or short story written by you :)
I don't think I have any disorders and I'm very sorry if I'm being disrespectful but I loved this game.
I've fought this battle and still am. It hurts but I'm better.
im still fighting the uphill battle for a diagnosis and this game oddly made me feel better about it.
I do not have any chronic problems that im aware of but there are aspects of this i feel as an AFAB person
Edit: just double checked the definition and i infact do have a few cronic illnesses
I'm glad there's a game for this, doctors really do not bother to diagnose and it's really sad how many trials a person will face until diagnosis. I got the bad ending where the mc sadly was so chronically ill that they lost the ability to do any activity... it was really heartbreaking.
wowwww love amazing design
this is relatable. i - i'm still in the "getting diagnosis" stage and i have fully given up. my mate keeps pushing me to try but like... lmao, doctors don't care and don't listen.
thank you so much for this game.
I know this isn't the same thing as a chronic illness but before I got diagnosed with PCOS, my doctor told me that the reason my cycle was off was because of ME and that I needed to change something. Doctors are trained to find the most convenient loophole to go through instead of treating the problem directly. This game shows that
Thank you for shedding some light on the issue of chronic pain! ♥
Thank you for sharing this game with us. The frustration you experienced and conveyed in the gameplay loop is palpable, as is the relief of finally being heard by a doctor, even though it really shouldn't have taken so long. I hope you're in a much better place now than you were before, and I wish you the very best.
Thank you for making this game!
For me it hit way too close to home, after 10 years of going back and forth between doctors and rarely being taken seriously. And even after my diagnosis there are still symptoms that are unclear where they come from or doctors who don't take the diagnosis seriously.
I like how you integrated the stats and that the influence of pain and energy/stress is visible. Being chronicially ill can be tiring and frustrating experience and the game captures that very well.
I wish you lots of perseverance and a good support network,
tand again: thanks for making this game <3
Wow, this is very, very relatable. I also have a chronic illness and it took years before I got an official diagnosis. The "You're just imagining it"title is such a good idea!
I hope you can take it slowly and get better.
I happen to be a Japanese/English to French Translator, and I would love to make this game available to a French speaking audience. All my info are on my itch.io profile page, so by all means feel free to reach out if you're interested!